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SUMMARY:

Sickle cell disease (SCD) is a genetic disorder affecting millions worldwide, it causes chronic pain, recurring infections, organ damage, and reduced quality of life. LYDO aims to empower families affected by sickle cell disease (SCD) in Uganda, where approximately 1- 2% of newborns are affected and 13- 15% of the population carries the sickle cell trait. Despite its significant impact, SCD often remains misunderstood and under-resourced.

CHALLENGES:

  1. • Limited access to genetic testing and counseling
  2. • Inadequate healthcare infrastructure
  3. • Lack of awareness and education
  4. • Stigma and misconceptions
  5. • Limited availability of effective treatments.
  6. • Financial constraints.
  7. • Inconsistent screening and prevention programs

SOLUTIONS:

  1. • Genetic testing and counseling: Informed decision-making and family planning.
  2. • Education and awareness: Community outreach, school programs, and public campaigns.
  3. • Access to effective medications like hydroxyurea, pain management, and other treatments.
  4. • Newborn screening: Universal screening to enable early intervention.
  5. • Research funding: Advance understanding and treatment of SCD.
  6. • Provide ongoing education and training.
  7. • Specialized SCD clinics: Increase access to expert care.

LONG-TERM IMPACT:

  1. • Improved health outcomes: Reduced complications, hospitalization, and mortality.
  2. • Enhanced quality of life: Increased productivity, education, and social participation.
  3. • Economic benefits: Reduced healthcare costs, increased workforce participation.
  4. • Empowered communities: Increased awareness, education, and support.
  5. • Reduced stigma: Greater understanding and acceptance.
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$200
USD
will facilitate home visiting for 750 mothers
$500
USD
will facilitate admission of pregnant mothers with severe malaria under pregnancy
$600
USD
will procure a microscope for the health centre
$
$25
USD
monthly
Will facilitate in family support groups through establishment and maintenance of support networks
$75
USD
monthly
Will facilitate in counseling and psychological support by addressing emotional and mental health needs.
$100
USD
monthly
Will facilitate in research and data collection
$200
USD
monthly
Will facilitate in education and training of healthcare providers, community workers, and families.
$250
USD
monthly
Will facilitate in genetic counseling services
$350
USD
monthly
Will facilitate in acquiring testing kits and laboratory services
$450
USD
monthly
Will facilitate in public awareness campaigns
$600
USD
monthly
Will facilitate in advocacy through promotion of policies supporting SCD prevention, treatment, and care
$800
USD
monthly
Will facilitate in community outreach by identifying and engaging of affected families
$1000
USD
monthly
Will facilitate in capacity building by strengthening healthcare systems and infrastructure.
$
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